Tuesday, 9 July 2013

Sports day

Evan has been working very hard because he wanted to do sports day on his own. 

 For those of you who follow him, you will know that the last two years sports day has been completed with a walking frame. 

Well he did it! 

He was so happy and afterwards we went to the pub for tea.  He just kept on walking.  

Since then the dreaded growth spurts have come, but after a week of falling over and being like jelly he gets back to walking again.  It's not perfect and he needs to be supervised, but he's getting there. 

In 5 weeks we will be back in St. Louis, probably for the last time.  Very excited to see what Dr Park says.  

Wednesday, 27 March 2013

Long time coming

I can't believe I haven't posted for so long.  It seems like life just went to normal and we have been getting on with things like any other family.  Evan is now nearly 6 and is going from strength to strength.

Last time I posted that Evan could walk 175 steps in one go, well now he is just walking.  it's not perfect and he still falls, but he is getting there.

He has been attending sessions at MP Fitness in Perth and Mike Poole has been fantastic with him.  Evan tends to lose focus and Mike's attitude and way of working makes sure he keeps on track.  After the last sessions there Evan walked up a grass bank on his own.  He hasn't done it since, but he has done it and that's good enough for now.

These videos are clips of his walking and walking up the grass bank.  His carer Sasha is behind him for safety but not helping him.




We were very lucky recently to attend a party in Daventry with many other families who have children pre or post SDR surgery.  Also a number of the team from St. Louis came over including Dr Park and some of the physio team.  It was so wonderful to see them all and so refreshing that they made the effort to come all this way from the USA to celebrate our children's' successes.

If you want to see how much our children mean to Dr Park and his team please take a look at this video, but get your tissues ready.  http://www.youtube.com/watch?v=BPtVBxj0CME

I will try not to leave it so long next time and aim to update you after Sports day. I'm hopeful after many years in a walking frame that Evan may be able to complete it unaided or with sticks.