Monday, 4 April 2011

First Steps

A lot has happened since my last posting.  Evan has been working hard in physio three times per week and adding in swimming, cycling and daily stretches/physio with Sasha.

It looks like it is starting to pay off.  His private physio Liz had him stepping over high hurdles using his sticks, something he would never have done before.  The You Tube video below shows him doing this really well.  He has also started walking with one stick only, especially in school.

 Evan Hurdling

One of the biggest breakthroughs has been Evan's ability to balance unaided, starting with 30 seconds and moving up to 2 1/2 minutes.  It has really helped him develop the additional gains we have experienced over the  last month and a half.

Evan standing

We finally saw the Orthopaedic Surgeon on Thursday in the UK who is happy with his progress, but he would like to check him in 6 months.  We need to reassess his orthotics for his feet however as he has some hyper mobility and we are not sure his feet are being fully supported by his splints.  This means his feet are bending outwards and this could cause future problems.  If we can't get an early appointment with the NHS, then we will have to go private.  The funds raised will help us achieve this.

The day after I went to Paris for a meeting and to catch up with some good friends who helped raise awareness of our fundraising efforts and contributed to us achieving our targets.  I was able to tell them all about Evan's success, not knowing that what I told them would be surpassed by the end of the day.  At 3pm I received the call to to give me the news I had been waiting for since the surgery - EVAN WALKED INDEPENDENTLY.  He started with two steps and then on to 5.  He hasn't managed so much since, but he has done it now and I know he will continue to improve month by month, day by day.  I have to give special mention to Sasha who works tirelessly with him and gets so much out of him.

Evan Walking Independently



  1. That's AMAZING!! I'm so pleased for you all. I can't believe how far he has come! Caryn xx

  2. Well Done Evan you are working so hard - keep it up
    Loved the singing xx